Never let it be said there is no reason or point to protests and speaking out. Over the last few weeks readers met our Overbrook neighbour 3 year old Phoebe Rose and learned of her many challenges.
Hearing of OHIP’s refusal to cover her latest treatment following a relapse – a treatment that will be available at Toronto’s Sick Kids in just over a month – her family, individuals, and neighbours spoke out and challenged this decision. Twitter followed and so did Ottawa Metro, CTV Morning and more.
This raising of voices has caused a re-examination of Phoebe’s case and today her Mother Jenny Doull shared the tremendous news that OHIP will cover her treatment in New York whilst Toronto sets up its own centre.
“Strength in numbers, strength in speaking out. @JennyDoull1 confirmed #OHIP will cover #PhoebeRose cancer treatment. Thank You all. “
Phoebe Rose Hoffman-Doull is a 3.5 year old beautiful blond bundle of energy living just over the river from Sandy Hill in Overbrook. She has an almost 6 year old sister called Mae, strong loving parents Jenny & Jonathan, cousins down the street and Grandparents Liza & Robin in Vanier. Phoebe Rose also has a rare form of childhood leukaemia having first been diagnosed at only 9 weeks old.
For her entire life Phoebe Rose and her family have been forced to battle for her survival. The struggles this family faced are unimaginable and yet they have relentlessly advocated for their daughter’s good health with grace and dignity.
Phoebe Rose relapsed this month; she and her family who have worked tirelessly to help other kids with cancer are facing their monster again for the 3rd time.
The family is sitting on a knife-edge as we write this waiting to hear whether OHIP will approve her latest treatment deemed “experimental” in Ontario. The family have now been waiting 15 days.
As Phoebe’s mother Jenny wrote “In the twelve days that we have waited, the disease in Phoebe’s bone marrow has grown and now takes up 50% of this precious and valuable space. ”
Please consider writing to your MP or Premier (or tweet @kathleen_Wynne) about Phobe Rose. This is acute and aggressive cancer and time is not a luxury afforded. Or, if you can help please go to the online-auction on Facebook to lighten the massive financial burden of the family.
Jenny Doull-Hoffman writes eloquently and passionately – spare a moment to visit her blog: PhoebeRoseRocks and get to know your neighbour.
Posted in Happenings, Uncategorized
Tagged Childhood Cancer, Doull-Hoffman, kathleen Wynne, OHIP, Overbrook, Overbrook CA, Phoebe Rose, PhoebeRoseRocks, Vanier, Vanier CA