Last week Jonathan and Jenny Hoffman-Doull, following an agonising 18-day wait, were notified that the deemed “experimental” treatment required to treat Phoebe Rose’s aggressive form of childhood leukaemia would not be covered by OHIP.
To quote Phoebe’s tireless mom Jenny “What makes this even more frustrating is that treatment is supposed to open at SickKids in 1-2 months… and, OHIP will cover it because it is at SickKids.”
Phoebe Rose is the brave and beautiful 3.5year old living over the River and across the road from Ward 12. She has battled cancer since the age of 9 weeks putting her tiny body through much to advance the chances of those afflicted by this monster. Phoebe deserves better from our Universal Health Care system. We must cease to compare ourselves to south of the border and hold up our own health-care to like-for-like universal systems in France, the UK, Netherlands and more. It is only through relevant comparison that we will recognise real models for improvement and demand better health care.
Sandy Hill Seen hopes to reach out to it’s readership for any fundraising events as the family assesses it’s next steps which will likely include travel to St Jude’s in Tennessee for treatment. Together by caring for our friends, our neighbours and acquaintances we make our immediate world a better place.
Related Post: Do You Know Phoebe Rose?
Please visit Jenny Doull’s beautifully written website PhoebeRoseRocks for the full details of this latest challenge faced by Phoebe and her family.